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Items tagged with: SevereME


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To create safer environment for people with #SevereME, 🗣️ always allow ADVOCATES 🗣️. Speaking takes immense energy for people with Severe ME and some are unable to speak. Obtain consent to have a family member or advocacy worker to speak on their behalf. #MECFS #SevereMEDay
@severeme @mecfs


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✏️EDUCATE healthcare staff🧑‍⚕️

Provide comprehensive training and up-to-date scientific understanding of ME. Discredited treatments CBT and GET are inappropriate.

Read more: buff.ly/46wv5lD #SevereMEDay #SevereME
#mecfs @severeme @mecfs


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👂LISTEN to people with #MyalgicE and their carers👂

It is crucial to have personalised care plans incorporating their needs, coming from lived experiences of symptom management. Do not ignore requests to protect patients from #PEM.
From Safer Hospital Care for People with #SevereME: buff.ly/46wv5lD
#MECFS

@severeme @mecfs


[Thread]New article "Safer Hospital Care for Severe ME".

worldmealliance.org/2024/08/sa…

Of course many of the tips are relevant to patients of all severities.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SevereME @severeme @mecfs

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People with #SevereME may have acute food intolerances & struggle to swallow or digest. Malnutrition can be fatal. Special diets, flexible meal times, IV hydration & tube feeding in adjusted feeding positions can all be life saving. Safer hospital care is possible. #SevereMEDay @severeme @mecfs