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Items tagged with: MEcfs
Disability Rights New York has filed a class action lawsuit against Nassau County seeking an injunction to stop the enforcement of mask bans.
This is exactly the kind of action we need to see happen against discriminatory & ableist mask bans.
Law enforcement should not be the arbiter of who is “sick enough” to legally wear a mask. Many disabilities are invisible - and police are NOT doctors.
For more on the Nassau County mask ban and why it’s discriminatory - as well as why everyone (disabled or not) should be allowed to wear a mask - read my article here: disabledginger.com/p/nassau-co…
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans
med-mastodon.com/@luckytran/11…
Nassau County, NY Makes Masking Illegal - Why Medical Exemptions Aren't the Answer
Defendants of mask bans point to medical exemptions as proof that disabled people have nothing to worry about. They're wrong. A look at why bans are ableist, discriminatory and dangerous.Broadwaybabyto (The Disabled Ginger)
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🔇Sensory safe environment🕶️ Provide private, soundproofed, and dimly lit rooms. Reduce smells, sensory overload, and physical contact to minimise post-exertional malaise (PEM). buff.ly/46wv5lD
#SevereMEDay #MECFS #MyalgicEncephalomyelitis
@severeme @mecfs
Safer Hospital Care for Severe ME - #SevereMEDay 2024 - World ME Alliance
Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME).World ME Alliance
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😌Pace, Pace and PACE😌 Prioritise resting. Undisturbed sleep is vital to prevent decline. Eliminate all non-essential interaction, move slowly and quietly around the patient. buff.ly/46wv5lD #MECFS #SevereMEDay
@severeme @mecfs
To create safer environment for people with #SevereME, 🗣️ always allow ADVOCATES 🗣️. Speaking takes immense energy for people with Severe ME and some are unable to speak. Obtain consent to have a family member or advocacy worker to speak on their behalf. #MECFS #SevereMEDay
@severeme @mecfs
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✏️EDUCATE healthcare staff🧑⚕️
Provide comprehensive training and up-to-date scientific understanding of ME. Discredited treatments CBT and GET are inappropriate.
Read more: buff.ly/46wv5lD #SevereMEDay #SevereME
#mecfs @severeme @mecfs
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👂LISTEN to people with #MyalgicE and their carers👂
It is crucial to have personalised care plans incorporating their needs, coming from lived experiences of symptom management. Do not ignore requests to protect patients from #PEM.
From Safer Hospital Care for People with #SevereME: buff.ly/46wv5lD
#MECFS
Safer Hospital Care for Severe ME - #SevereMEDay 2024 - World ME Alliance
Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME).World ME Alliance
[Thread]New article "Safer Hospital Care for Severe ME".
worldmealliance.org/2024/08/sa…
Of course many of the tips are relevant to patients of all severities.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SevereME @severeme @mecfs
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Safer Hospital Care for Severe ME - #SevereMEDay 2024 - World ME Alliance
Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME).World ME Alliance
Falls jemand diesen Beitrag eines seit seiner #covid Infektion schwer an #mecfs erkrankten Journalisten (Tim Braune) von vor einigen Wochen nicht mitbekommen hat, ich finde dass auch sein Beitrag zu dem Thema sehr deutlich und wichtig ist:
rp-online.de/leben/gesundheit/…
Long Covid & ME/CFS Betroffener berichtet: „Gespenst, das lautlos weint“
Unser Kollege Tim Braune erkrankte nach einer Corona-Infektion an Long-Covid und an ME/CFS. Nun ist er Rentner statt Chefreporter – mit 49 Jahren. Er schreibt, dass er alles verpasst: sein eigenes Leben und das seiner Kinder.Tim Braune (RP ONLINE)
On a more serious note, here's a web page with information on pacing so you can avoid PEM (post-exertional malaise, also called post-exertional symptom exacerbation).
Scroll down to see links to pacing and management guides.
EDIT: Pacing is not a treatment, it's just a way to try to minimize symptoms!
We need to find better treatments, or a cure, but sadly this is what we have right now.
#MEcfs #LongCovid #PEM #StopRestPace
Stop. Rest. Pace. - #MEAction Network
If you are new to Long COVID or ME/CFS, it is important to learn how to #StopRestPace.#MEAction Network
New Leicester (UK) #MEcfs & #PostCovid study that is recruiting
Investigating the impact of ME/CFS & #LongCOVID on visual perception & sustained attention using Pupil Frequency Tagging & EEG
dougiebarrett.github.io/Lab/pa…
ME Research UK-funded
Not a biopsychosocial study
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
"Oxygen extraction by the body’s tissues was compromised in patients who had symptoms of #exerciseIntolerance after #COVID"
"Patients are told that their symptoms are a result of deconditioning, or decline from lack of physical activity.
Our findings contradict that hypothesis."
#PostCovid #LongCovid #PEM #MECFS #corona #covid19
news.yale.edu/2023/12/19/study…
Study helps explain post-COVID exercise intolerance
Exercise intolerance is one symptom associated with long COVID. A new study helps explain its cause.YaleNews
