Items tagged with: DisabilityRights

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Items tagged with: DisabilityRights


When I started The Disabled Ginger I sent it to my friends and family … as most of us do.

I was proud that I was finally standing up for disability rights. That I was taking my pain and putting it on the page in an effort to help others. That I had found something that lit a spark inside me.

Unfortunately, many of my friends didn’t feel the same way.

My disabilities are invisible, and I had become very good at hiding them. Apparently that’s what people expected of me, as they didn’t like this “new” version of Kelly.

Almost none of my friends subscribed. What’s worse, many stopped talking to me. Or would only reply in brief texts.

It’s almost been a year since I launched, and my circle is noticeably smaller. Many people I thought I was close with haven’t reached out for nearly 6 months.

When you find your purpose and your passion, it’s an incredible feeling. Hopefully people support you.

Not everyone will. And that’s ok.

It’s painful seeing so many relationships fade away. It hurts knowing they don’t see the value in me now that I’m “officially” disabled.

As painful as it is, it’s also a perfect example of why I became an advocate. Ableism is a huge problem. Being disabled can be incredibly lonely. I wanted to give a voice to those who haven’t yet found theirs.

In the process I’ve met incredible people from all over the world who inspire me to keep going. Who give me a reason to write every day. Who remind me of the compassion, love and goodness that’s still out there.

Thank you to each and every one of you. I couldn’t do this alone.

My latest looks at the reasons we hide, and what would happen if we all decided to stop hiding and show the world the realities of chronic illness:

disabledginger.com/p/why-are-c…

#chronicillness #longcovid #mecfs #ableism #disability #disabilityrights #eugenics


Okay, this is just stupid! One of the benefits of having a #website is that people can access your services at any time, day or night, right? Well, I just went to the #SocialSecurity website to try and get a benefit verification letter, which I need because I'm trying to reestablish a #VocationalRehabilitation case. I clicked "Sign In" and was greeted by this message:

This service is not available at this time.
Please try again during our regular service hours (Eastern Time):

| Day | Service Hours |
|-----|--------------|
| Monday-Friday | 4:15 a.m. - 1:00 a.m. |
| Saturday | 5:00 a.m. - 11:00 p.m. |
| Sunday | 8:00 a.m. - 11:30 p.m. |
| Federal Holidays | Same hours as the day the holiday occurs. |

If you need immediate assistance:

  • You may call us Monday through Friday: 8:00AM - 7:00PM at: 1-800-772-1213
  • If you are deaf or hard-of-hearing, call our toll-free TTY number: 1-800-325-0778


This of the website limitation is especially frustrating for me because I have a #Non24HourSleepWakeDisorder and an unpredictable schedule. It feels like the website is designed without thinking about people like me who need flexibility.
Has anyone else out there had similar issues with government services or other websites?
#Vent #Venting #Disability #ChronicIllness #Accessibility #DisabilityRights #InclusiveDesign #GovernmentServices #PublicServices
@disability@a.gup.pe @disability@beehaw.org @disabilityjustice @accessibility @chronicillness @spooniechat @spoonies


The proposed mask ban in North Carolina will turn people who are trying to protect their health (and the health of others) into criminals.

While the action of the government doesn’t surprise me - the response of the public does. I expected most people to find this type of law appalling - and instead I’m seeing people celebrating what I consider to be eugenics in action.

I wrote about the proposed bill, the public response and the disability community’s right to survive:

open.substack.com/pub/disabled…

#CovidIsAirborne #CovidIsNotOver #CovidCautious #sarscov2 #maskup #WearAMask #CleanAir #Pandemic #Disability #accessibility #DisabilityRights #ableism #Eugenics #MaskBans


This is a photo I took the last time I was trying to get off a plane, but the staff refused to bring my chair to the door. I'm waiting with my wheelchair joystick, headrest, and cushion as the cleaning crew moves through the plane.

The Department of Transportation is proposing new rules to improve the experience of passengers like me. However, rules already exist—the problem is that the gate agents, flight attendants, and airport staff who should follow them either accidentally or willfully ignore them.

The new rules include training, and I'm suggesting expanding the training to all customer-facing staff. I also suggest having the rules clearly posted. If you like these ideas, please consider posting a comment to the DOT in support, either in your own words or referring to mine:

————

I thank Secretary Buttigieg, Senator Duckworth, Director Benjamin, and Disabled activists for this important proposal. As a Disabled air traveler and power wheelchair rider, I have two requests.

1. The current proposal includes "annual training, including hands-on training, of airline employees and contractors who physically assist passengers with mobility disabilities or handle passengers’ wheelchairs." I request that this annual training be provided to all airline and airport staff who interact with customers, not just those who physically assist or handle.

In fact, as a woman with muscular dystrophy who cannot walk at all, my best experiences have been with the people physically lifting me, and my worst experiences have been with gate agents and flight attendants who treat me with disrespect while violating the law. They have raised their voices at me while I'm instructing my assistant in preparing my wheelchair for stowage, threatened to "offload" me from the flight, repeatedly denied me and rolled their eyes when I request that my wheelchair be brought to the door, and repeatedly resisted ensuring adjoining seats for me and my assistant, who sometimes has to physically prevent me from falling forward from the airplane seat.

I request that you expand the annual training to all customer-facing airline and airport staff, including gate agents and flight attendants, because these staff members have significant power over Disabled travelers' safety and experiences.

2. While the DOT's Aviation Consumer Protection policies (which state "Your device must be returned to you in a timely manner as close as possible to the door of the aircraft") and Airline Passengers with Disabilities Bill of Rights are excellent, they are difficult to call upon in the moment they're being violated. When gate agents, flight attendants, and other staff have tried to pressure me against the law, I have had to resort to finding the DOT's laws and policies on my phone (try doing that in airplane mode!). The times I can successfully excavate and point to the documentation are the only times staff have reluctantly backed down. But I believe the burden of carrying the law around shouldn't fall on each Disabled passenger.

Therefore, I request that these laws and policies be easily visible and available in accessible formats, such as: (a) being posted prominently at gate terminals and check-in desks, (b) being available in print at gate terminals and check-in desks, and (c) being included in onboard brochures at every seat.

I believe these two additions to the proposal will greatly enhance its ability to accomplish its mission to ensure airline passengers who ride wheelchairs can travel safely and with dignity.

————

Link to my comment: regulations.gov/comment/DOT-OS…
Submit your own comment: regulations.gov/commenton/DOT-…
Press announcement: transportation.gov/briefing-ro…
Full text download of the proposed rule: regulations.gov/document/DOT-O…
Aviation Consumer Protection policy on wheelchairs and other assistive devices: transportation.gov/individuals…
Airline Passengers with Disabilities Bill of Rights: transportation.gov/airconsumer…
Tags: #Disability, #DisabilityJustice, #DisabilityRights, #ableism, #travel