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Items tagged with: longcovid


@aquasscum
@DenisCOVIDinfoguy

Wie wäre es, wenn ihr hier auf Mastodon #LongCovid und #corona etwas ernster nehmen würdet!

Einmal pro Woche ein Tröt zum Abwassermonitoring wäre schön! Welche Varianten breiten sich gerade aus?

Eure Sprachlosigkeit erzeugt den verheerend falschen Eindruck, Corona sei kein Problem mehr...

Wie viele Infizierte entwickeln nochmal Long Covid? Wer hat ein erhöhtes Risiko Long Covid zu entwickeln?

Schweigen von euch. 🤨😷😬


Had a mild #COVID19 infection?
Doesn’t mean it’s mild.

#SARS-Cov-2 can behave like HIV or Polio. It can cause internal damage long after apparent recovery.

Mild initial infection does not = mild disease.

Multiple studies show this. #LongCovid
nbcnews.com/health/health-news…


Sensitive content


Disability Rights New York has filed a class action lawsuit against Nassau County seeking an injunction to stop the enforcement of mask bans.

This is exactly the kind of action we need to see happen against discriminatory & ableist mask bans.

Law enforcement should not be the arbiter of who is “sick enough” to legally wear a mask. Many disabilities are invisible - and police are NOT doctors.

For more on the Nassau County mask ban and why it’s discriminatory - as well as why everyone (disabled or not) should be allowed to wear a mask - read my article here: disabledginger.com/p/nassau-co…

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans

med-mastodon.com/@luckytran/11…


Sibley Hospital, Washington DC, USA: last night an ER nurse called hospital security on the Executive Director of Long Covid Campaign and Fellow at both Harvard and Council on Foreign Relations for declining to remove her mask. Meighan Stone has #longcovid and is immunocompromised.


I urge everyone to read this post from Lucky Tran about a proposed mask ban in Nassau County that would see people fined $1000 for wearing a mask. As soon as North Carolina passed their mask ban - we began seeing other cities and states follow suit.

Mask bans are wrong. Period. We are in an airborne pandemic where one of our best and only tools remains a well fitted respirator. The idea that people should have to carry around a medical exemption (which not everyone can obtain) or face fines and/or arrest is ableist and discriminatory. These bans force disabled people out of society because they don’t allow us to exist safely in public spaces - and they will increase the spread of Covid.

Call, email, post… speak out against these bans. Let lawmakers know you won’t visit any city or state that doesn’t allow people to wear a medical device for personal protection and community care.

#CovidIsAirborne #CovidCautious #CovidIsNotOver #MaskBan #BoycottNC #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #NorthCarolina #NewYork #UglyLaws #NewJersey

med-mastodon.com/@luckytran/11…


I never thought I'd end up with a chronic illness where the most useful health advice comes from an old Vaudeville joke:

Patient: Doc, it hurts when I do this!

Doctor: Then don't do that!

#MEcfs #LongCovid #NEISvoid #PEM #StopRestPace #Humor


On a more serious note, here's a web page with information on pacing so you can avoid PEM (post-exertional malaise, also called post-exertional symptom exacerbation).

Scroll down to see links to pacing and management guides.

meaction.net/stoprestpace/

EDIT: Pacing is not a treatment, it's just a way to try to minimize symptoms!

We need to find better treatments, or a cure, but sadly this is what we have right now.

#MEcfs #LongCovid #PEM #StopRestPace


Da beklage ich erst heute noch die mangelnde Medienberichterstattung zur aktuellen #Corona-Lage - und finde plötzlich dieses tolle Meinungsstück. 👏

"Und wer einen Fuß in die Tür der wenigen #LongCovid-Ambulanzen bekommen will, muss oft Monate warten. Eine wirkliche Strategie ist nicht in Sicht. Angesichts der steigenden Fallzahlen ist das ziemlich leichtsinnig."

nrz.de/politik/article40664678…


New Leicester (UK) #MEcfs & #PostCovid study that is recruiting

Investigating the impact of ME/CFS & #LongCOVID on visual perception & sustained attention using Pupil Frequency Tagging & EEG

dougiebarrett.github.io/Lab/pa…
ME Research UK-funded

Not a biopsychosocial study

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME


Julia Doubleday (The Gauntlet) takes on that horrendous article on NPR:

"NPR’s decision to platform a piece about the difficulty of navigating life with a spouse who can’t dine indoors, instead of a piece about the difficulty of navigating a society that has made dining indoors unsafe for vulnerable groups, is just that- a decision, and a political one. It is part of an ongoing effort to cast those who cannot play along with the “back to normal” fantasy- those who are being harmed and killed by it- as weird, paranoid, crazy, annoying, and “the problem.”

Long COVID is a major thorn in the side of the “back to normal” approach to COVID. While some people (appear) to recover well from COVID, many others suffer long-term post-COVID health problems."

thegauntlet.news/p/disabled-pe…

#LongCOVID #AntiAbleism #CovidIsNotOver


Sharing for a friend. Please boost/repost!

Parent or teacher interested in a Covid safe school?! Centered in disability justice. One is forming in MA/RI, location TBD. Email for more info or with questions!

@disability @mcas
@chronicillness
@disabilityjustice
@education @neurodivergents

#Covid #MaskUp #LongCovid #Education #disability #justice #school #k12


A really good summary by Cort Johnson on the Dutch research about #LongCovid muscle damage and malfunction. As I write this, my legs are hurting healthrising.org/blog/2024/01/…

Kudos to Patient Led Research Collaborative for funding this so fast!


"Oxygen extraction by the body’s tissues was compromised in patients who had symptoms of #exerciseIntolerance after #COVID"

"Patients are told that their symptoms are a result of deconditioning, or decline from lack of physical activity.
Our findings contradict that hypothesis."

#PostCovid #LongCovid #PEM #MECFS #corona #covid19

news.yale.edu/2023/12/19/study…


I was hoping to participate in this research into a possible biological mechanism of fatigue, but it turns out I'm not eligible as I "only" have #LongCovid - they are looking for people who have a chronic fatigue / #MECFS diagnosis specifically (only including LC if it followed an existing ME/CFS diagnosis). So I thought I'd post the ad here. They're also looking for healthy relatives of participants to be control subjects.


SARS-CoV-2 attacks the mitochondria in cells, depleting their energy.

"researchers found that the virus blocks specific genes that use oxygen to create ATP, forcing the body to deplete finite energy reserves in the body. Without an energy source, cells throughout the body begin to starve, with the cells powering the brain and the heart suffering the most.”

news.unchealthcare.org/2023/10…

#LongCovid #Covid19


This is a very accessible review paper of long covid research to data. Please read it, please convince others to read it. Please share the harrowing organ damage diagram. #longcovid nature.com/articles/s41579-022…


"Study Finds There Are 4 Subtypes of Long COVID"

#LongCovid #research
Article here: prevention.com/health/a4243380…

Study here: nature.com/articles/s41591-022…


Important!

Share this article with everyone. It is outstanding

You May Be Early, but You're Not Wrong: A Covid Reading List, by
@JessicaLexicus

#Covid
#CovidIsNotOver
#LongCOVID
#MaskUp

jessicawildfire.substack.com/p…