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Gaslit as a patient with Ehlers-Danlos syndrome - a connective tissue disorder with many symptoms - Cortney Gensemer set out to publish about the disorder in top journals...and then send the results to the doctors who told her she wasn't really sick.
STAT's been doing some great work lately.
#medicine #genetics #ChronicIllness
https://www.statnews.com/2022/12/12/ehlers-danlos-syndrome-patients-turned-researchers/
Revenge of the gaslit patients: Now they’re Ehlers-Danlos scientists
A generation of young patient-researchers are advancing the science of Ehlers-Danlos syndrome, which they had to fight to get recognized.Isabella Cueto (STAT)