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Following up on my last post: While "Dining in the Dark" uses blindfolds to simulate blindness—a deeply problematic practice—Netflix’s *Love Is Blind* raises a different but related issue: the casual use of "blindness" as a metaphor.

The title refers to the idea that love can transcend physical appearance, but it uses blindness to symbolize ignorance or a lack of perception. This isn’t new—our language is full of metaphors like "turning a blind eye" or "blind ambition" that associate blindness with negative traits like ignorance or inability.

As a blind person, I see how language shapes perceptions. These metaphors may seem harmless, but they perpetuate outdated, ableist notions of blindness as a deficiency. They turn our lived experiences into rhetorical devices, erasing the richness of blind culture and reducing us to symbols of "lack."

No, *Love Is Blind* isn’t offensive in the same way as "Dining in the Dark," which makes a spectacle of our lives. But the metaphorical use of blindness shows how ingrained ableism is in language and culture. Casual metaphors matter—they reinforce unconscious biases that we must challenge.

Blindness isn’t a symbol. It’s a lived reality, full of challenges, skills, and a vibrant community. Let’s think more critically about how we use disability in language and storytelling.

💬 What do you think?

#Disability #Ableism #Blind #LanguageMatters #Inclusion


Before you tell a disabled person that they need to “just make the healthcare worker mask”… please understand the imbalance of power that exists in hospital settings.

We can’t “just make them” do anything. If they refuse -our options are to take the risk or go without care.

There’s little recourse when a HCW refuses to mask - there’s almost NO recourse that exists in the moment.

You can file a complaint after the fact - but if the care you require is urgent or an emergency - that won’t help you

Imagine you’re taken to the emergency room with an urgent (or life threatening) issue. The doctor comes in and refuses to wear a mask.

Do you walk out? Throw a fit? These are not good options

Even if you manage to keep your composure and strongly advocate for them to reconsider - the longer you argue the more potential virus you’re being exposed to.

The more you “annoy” the staff - the greater the odds of retaliation or reduction in care.

This isn’t like telling a friend or a colleague to mask. The dynamic is completely different.

HCWs have the ability to help you or harm you. You want them on your side.

A note in your chart indicating you’re anxious, difficult, non compliant etc can follow you around and impact all your care going forward. Getting charts corrected and notes removed is a time consuming and difficult process

As a result many patients don’t push the issue. They delay medical care as long as possible and then just cross their fingers they will get a compassionate HCW when they do finally go.

These delays can also cause harm - and shouldn’t be necessary.

Hospitals have never been terribly safe places. They’re where the strongest and most resistant bugs thrive. They’re also where the sickest and most vulnerable people are.

At least before Covid it felt like hospitals were TRYING to prevent infection.

These days it’s as though any amount of infection control is seen as weak. People are actually bragging about how many times they’ve had Covid or about the risks they’re taking with their health. Staff aren’t masking even around babies, cancer & transplant patients

We have to change course. Our healthcare systems could barely handle the amount of chronic illness they were facing before Covid - they certainly can’t handle the constant influx of disabled patients and staff that Covid is causing.

This is why we need mandatory masks in healthcare settings. The responsibility to keep themselves and others safe should NOT fall on the vulnerable patient.

Many are unable to advocate for themselves - and others are unable to mask.

Mandatory masking protects everyone

Lastly - the solution to this problem should not be “don’t go to the hospital”. It’s not right to make ANY patient feel like they’re wrong for seeking care. Like they’ve somehow “failed” if they end up with Covid.

Until you’re facing a life threatening emergency or serious health challenges - you can’t possibly know what you would do.

Is it scary to go to the hospital right now? Of course. Is it also necessary? Absolutely.

Patients should never be blamed for needing care or for being unable to get HCWs to mask. The system is failing us - we aren’t failing each other.

If you need the hospital - you have all my love & support. It’s impossibly hard - and I will keep fighting to make it better.

As long as hospitals refuse to do what’s right to prevent COVID (hello clean air & mandatory masking)… the onus is unfairly on the PATIENT to avoid COVID.

My guide offers tips to reduce your risk of hospital acquired COVID (and other HAIs)

disabledginger.com/p/how-to-st…

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans


The G7 countries had a meeting on disability and inclusion for the first time ever.

These groups should really take the next step and add ableism to the meeting topics as it is where lack of inclusion stems from.

g7disabilityinclusion.it/en/g7… @disability #Ableism #Economy #Disability


Lest you think ride share discrimination is limited to those with service dogs, an #Uber driver told me she wouldn't transport me from a hotel to the Las Vegas airport because I am a blind person without sighted assistance. She tried to get a hotel employee to accompany me. I use a white cane. This stuff is real even as we conclude the first quarter of the 21st century. #accessibility #ableism #blind #discrimination #RightToRide


Feedback submitted to Caltrain:

"Hi there, I just tried to get on train 424, which stopped at San Antonio around 6:35 pm. I was on the station rushing to the blue zone at the opposite end of the platform. It was very difficult to go over the bumpy stamped concrete. No conductor came out to meet me, and the train left without me. I'm quite surprised by this, as the conductors are usually very attentive. If I had been able to walk, I would have been able get on the train, but this time, I felt excluded based on my wheelchair. Is there anything you can do to make this better?"

Tags: #transit #ableism, #Caltrain


Reading WITHOUT Sight: Challenging the Ableist Assumptions of Non-Visual Literacy

In today’s world, where accessibility is supposedly ever-expanding, comments on how blind people read – or rather, whether we “really” read – reveal a significant amount of latent ableism. When someone remarks, “You’re not really reading because you have to listen to it,” they are unwittingly touching on deep-seated biases that marginalize blind people and our experience. For me, as a blind person, these comments feel aggressive, like a slur that undermines not only my intellect but my very existence within a literate society. The underlying suggestion that my method of consuming literature is somehow less legitimate than traditional reading reflects a lack of understanding and a failure to appreciate the richness of alternative literacy.

At its core, this statement implies that visual reading is the only valid form of reading – an attitude deeply rooted in ableist assumptions. Just as the sighted world learns and adapts to new ways of accessing information, blind people, too, use technology to bridge gaps that were once insurmountable. By suggesting that listening to an audiobook or using a screen reader is inferior to reading with one’s eyes, the speaker perpetuates a narrow view of literacy that excludes anyone who does not fit their narrow definition of a reader.

The Emotional Impact of Dismissive Comments

Hearing such remarks can be hurtful. When someone tells me I’m not “really reading,” they trivialize the effort, love, and passion I pour into every book. Reading, in any form, is more than just a mechanical process; it’s an engagement with ideas, narratives, and emotions. Denying my capacity to “really” read is akin to erasing my agency in choosing to explore literature. It dismisses my experience and can feel like a personal attack, minimizing my intelligence and curiosity.

Moreover, these comments strip away the nuances of my identity and life experience as a blind person. They ignore the reality that many of us navigate systems not designed with us in mind, yet we adapt with resilience and creativity. Listening to a book, for me, is as much an engagement with its content as sighted reading is for others. This medium allows me to dive into narratives, to imagine worlds, and to connect with characters just as vividly as if I were reading visually. Such a remark does not just invalidate my experience, but it also points to a societal failure to recognize and celebrate the diverse ways people interact with literature.

Understanding the Roots of Ableism

Ableism, at its core, stems from a belief that certain abilities, like sight, are inherently superior. This mindset manifests in the way sighted people sometimes view adaptations like screen readers or braille as substitutes, rather than as equally valid methods of accessing information. This thought pattern diminishes the lived experiences of blind individuals and subtly implies that we’re only half-participating in the world of literature. The comment reflects an ideology that upholds one mode of experiencing the world as ideal, while relegating others to second-class status.

Furthermore, literacy is a concept that should not be defined by sensory modality. Whether through braille, audio, or screen readers, blind readers engage in the same cognitive processes of understanding and analying text. These methods are not merely compensatory but rather alternate pathways that lead to the same destination.

Responding Constructively

Addressing this kind of ableism requires a blend of assertiveness and education. In responding to these comments, I could say something like, “When you suggest that I’m not really reading, it feels as if you’re diminishing my engagement with the text. For me, listening to a book offers the same intellectual and emotional journey as sighted reading does for you. It’s not about the method; it’s about the experience of connecting with the material. I’d appreciate it if we could acknowledge that there are many valid ways to be a reader.”

By framing the response in this way, I affirm my own experience while gently inviting the person to reconsider their assumptions. Another approach could be to highlight the diversity of literacy methods available today: “There’s a wide range of ways people can read now, whether through audio, braille, or text-to-speech technology. These methods open up the world of literature to more people and should be celebrated rather than diminished.”

My hope is that, in responding to these comments, I can foster a moment of reflection for others. Reading is about engaging with ideas and stories, not about the medium through which we access them. Ableist remarks about non-visual reading, though sometimes spoken thoughtlessly, present an opportunity to open minds and broaden perspectives. By sharing my experience, I contribute to a more inclusive understanding of literacy and help to dismantle the harmful stereotypes that still persist.

Conclusion

Reading is not an act confined to the eyes; it is an intellectual and emotional endeavour that transcends sensory modality. For many blind people, it is the ultimate expression of our love for stories, our curiosity, and our intellect. When someone diminishes my experience as “not really reading,” they underscore a fundamental misunderstanding of what it means to be a reader. As we continue to expand our understanding of accessibility, it is crucial to challenge and reframe such biases. Only by doing so can we begin to recognize and respect the many ways in which people interact with the written word, enriching our collective experience of literature in all its forms.

#Ableism #Accessibility #Audible #Blind #Braille #Disability #Equality #Inclusion #Kindle


Ugly laws will be enforced in Louisville. Medical masks will be allowed at “police discretion”.

Police chief says: “We do have to look at behavior of person, what they're doing at time, those kinds of things."

I have a disability that makes me LOOK nervous. I “appear” like I could be doing something wrong. As a result these bans terrify me.

Disabled people have been begging others to mask for years because we were afraid of this exact outcome.

Failure to normalize masking means those of us who NEED to wear them are seen as outliers. Deviants. Possibly criminals. There’s a target on our back.

Medical exemptions are not the answer - they leave too many people behind.

Everyone should have the right to protect themselves from a deadly & disabling virus. Whether already disabled or not.

Banning masks and then saying that the police will determine who is “legit” in wearing one based on their overall behaviour? Its terrifying.

This is exactly HOW profiling occurs. These bans will disproportionately impact marginalized individuals and people of colour.

They could also impact someone with a condition like mine. I’m immune compromised and high risk for Covid complications - so I ALWAYS wear a fitted respirator when I’m outside my home.

I also have dysautonomia - a literal malfunctioning of my autonomic nervous system.

If I’m upright - I “look” nervous. I’m sweaty, shaky, twitchy and sometimes wobbling. I’ve been accused of being drunk in public on MANY occasions.

It’s not my fault - Dysautonomia means I can’t regulate my blood pressure, heart rate, sweating & even pupil dilation.

The things that cops are trained to look for and consider “suspicious” are all symptoms of my disease.

In the past - the worst thing I had to worry about was being accused of public drunkenness. Even THAT was scary for me.

Mask bans mean I could be arrested and charged with a crime. Just for trying to keep myself & others safe.

I tell this story to encourage others to speak up against mask bans. To mask up in solidarity and help us normalize them so they will be harder to ban.

To encourage people to stop assuming if you have a “legitimate medical reason” you won’t have to worry. We DO worry.

We need less judgement, assumptions and gaslighting and more allies. These laws are dangerous. They will lead to more death, disability AND division.

Many of us have difficulty convincing HCWs of our illnesses - what hope do we have with police?

Please - if you CAN mask - now is the time. You don’t have to wait for a mandate or permission. You can choose to say “enough is enough” & be part of the solution. Break chains of transmission. Protect the vulnerable. Don’t allow government to decide who is & isn’t expendable.

We all have power and agency and can choose to do the right thing. We don’t have to sit idly by and accept repeated covid infections & exclusion of disabled people from public life.

Let’s work together and stop these bans before it’s too late.

wdrb.com/news/louisville-polic…

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #UglyLaws


I called EMS once and police showed up before paramedics (paramedics were busy).

The first thing they said? “You don’t look sick.”

They waited for paramedics who took me to hospital - but that initial response stuck with me.

It’s why mask bans are dangerous. Police aren’t trained to make medical decisions. They shouldn’t be the ones deciding who can and can’t legally wear a mask.

Many illnesses are invisible - you wouldn’t KNOW we’re disabled to look at us.

Most of us have experienced gaslighting from friends, family and even doctors - people are quick to judge and decide you’re “not that sick.”

So are we really expected to risk criminal charges by wearing a respirator & just HOPE police will believe we truly “need it”?

Not to mention that medical exemptions leave behind anyone who wants to mask to protect and preserve their health - as well as caregivers and family of disabled people.

We rely on them to keep us safe - we NEED them masking in public.

I sincerely hope more people join the fight against mask bans soon - because if we don’t fight against them - more cities and states will pass them and more people will suffer.

A good respirator is excellent protection against covid & other illnesses.

We shouldn’t be further excluding disabled and high risk people from public - but that’s exactly what these ugly laws do.

Call your elected officials - tell them medical masks can not and should not be banned.

Don’t embrace escalating fascism and eugenics just because you don’t think it will impact you.

Don’t celebrate it because you hold a grudge about mask mandates.

It won’t stop with disabled people. Help us now & your future self will thank you.

My full article on mask bans, medical exemptions and how we’re witnessing (and even welcoming) escalating eugenics and fascism: disabledginger.com/p/we-are-wi…

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #bullying #CleanAirClassrooms #UglyLaws


Oh, thank goodness not having a fully functional screen reader isn’t a blocker for Fedora 41. We wouldn’t want them to miss their 10th anniversary of shipping an operating system without a fully functional screen reader, after all.

ar.al/2024/06/23/fedora-has-be…

#Fedora #RedHat #IBM #a11y #accessibility #screenReader #orca #linux #openSource #FOSS #ableism masto.ai/@phoronix/11307885166…


Disability Rights New York has filed a class action lawsuit against Nassau County seeking an injunction to stop the enforcement of mask bans.

This is exactly the kind of action we need to see happen against discriminatory & ableist mask bans.

Law enforcement should not be the arbiter of who is “sick enough” to legally wear a mask. Many disabilities are invisible - and police are NOT doctors.

For more on the Nassau County mask ban and why it’s discriminatory - as well as why everyone (disabled or not) should be allowed to wear a mask - read my article here: disabledginger.com/p/nassau-co…

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans

med-mastodon.com/@luckytran/11…


Newsflash: other people exist!

For the love of God, don’t block the sidewalk for wheelchair users and people with strollers or suitcases or whatever. Some massive main character syndrome on display here.

#frustration #antisocial #ableism #accessibility


I urge everyone to read this post from Lucky Tran about a proposed mask ban in Nassau County that would see people fined $1000 for wearing a mask. As soon as North Carolina passed their mask ban - we began seeing other cities and states follow suit.

Mask bans are wrong. Period. We are in an airborne pandemic where one of our best and only tools remains a well fitted respirator. The idea that people should have to carry around a medical exemption (which not everyone can obtain) or face fines and/or arrest is ableist and discriminatory. These bans force disabled people out of society because they don’t allow us to exist safely in public spaces - and they will increase the spread of Covid.

Call, email, post… speak out against these bans. Let lawmakers know you won’t visit any city or state that doesn’t allow people to wear a medical device for personal protection and community care.

#CovidIsAirborne #CovidCautious #CovidIsNotOver #MaskBan #BoycottNC #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #NorthCarolina #NewYork #UglyLaws #NewJersey

med-mastodon.com/@luckytran/11…


Fedora has been shipping with a broken screen reader for NINE YEARS but the real problem is me

ar.al/2024/06/23/fedora-has-be…

#fedora #accessibility #a11y #ableism #RedHat #IBM #Linux #OpenSource


Freedom isn’t freedom if it’s only for abled people.

Then again, there’s a reason you don’t see the word “freedom” in “open source.”

And there’s a reason “share alike” is just one of the principles of Small Technology, alongside a non-colonial approach, inclusivity, and others. (small-tech.org/about/#small-te…)

#openSource #ableism #foss #freedom #accessibility #a11y #inclusivity #SmallTech


For eight years Fedora has been shipping GNOME with a broken screen reader!

EIGHT YEARS!

(Wayland has been default on Fedora for eight years – since Fedora 25, released in 2016.)

And a hundred-billion-dollar corporation like IBM ships operating systems today based on it with a broken screen reader.

What is an ableist culture? One in which the people who call this out get ostracised.

#ableism #fedora #redHat #IBM #gnome #cosmic #wayland #a11y #system76 #linux fosstodon.org/@soller/11264637…


Sensitive content


The proposed mask ban in North Carolina will turn people who are trying to protect their health (and the health of others) into criminals.

While the action of the government doesn’t surprise me - the response of the public does. I expected most people to find this type of law appalling - and instead I’m seeing people celebrating what I consider to be eugenics in action.

I wrote about the proposed bill, the public response and the disability community’s right to survive:

open.substack.com/pub/disabled…

#CovidIsAirborne #CovidIsNotOver #CovidCautious #sarscov2 #maskup #WearAMask #CleanAir #Pandemic #Disability #accessibility #DisabilityRights #ableism #Eugenics #MaskBans


This ought to be good. Is this the same Pablo Reguerín who was sitting alongside Chancellor May at an interview with The California Aggie's editorial where May lobbied for the student fee supporting NCAA athlete perqs by likening NCAA athletes to disabled students by saying they too needed "special" supports? And didn't say anything about that? That Reguerín?

Do you know who was among the chancellors who never replied to hundreds of emails regarding UC's ableism? Chancellor May of UC Davis!! @disability @academicchatter

#UCAccessNow #Ableism #UCDavis #DavisCA


The ableist analogy Chancellor May made.

Disabled students don't only PAY to be on campus - no free ride disability scholarship - UC has a legal obligation it continues flouting to be fully accessible to the public funding it. Arguing that the student body should pay fees to support a small % of student athletes/future mega sports corp employees who are given special tutors, a special health building, and other perqs already is not only patently ridiculous, but by likening it in this way to how UC chooses to segregate disabled students instead of being highest common denominator of accessible by default is bound to further encourage resentment of disabled students as a "cost"!

theaggie.org/2021/12/02/editor… @disability @academicchatter #Ableism #CivilRights #UCDavis


This is a photo I took the last time I was trying to get off a plane, but the staff refused to bring my chair to the door. I'm waiting with my wheelchair joystick, headrest, and cushion as the cleaning crew moves through the plane.

The Department of Transportation is proposing new rules to improve the experience of passengers like me. However, rules already exist—the problem is that the gate agents, flight attendants, and airport staff who should follow them either accidentally or willfully ignore them.

The new rules include training, and I'm suggesting expanding the training to all customer-facing staff. I also suggest having the rules clearly posted. If you like these ideas, please consider posting a comment to the DOT in support, either in your own words or referring to mine:

————

I thank Secretary Buttigieg, Senator Duckworth, Director Benjamin, and Disabled activists for this important proposal. As a Disabled air traveler and power wheelchair rider, I have two requests.

1. The current proposal includes "annual training, including hands-on training, of airline employees and contractors who physically assist passengers with mobility disabilities or handle passengers’ wheelchairs." I request that this annual training be provided to all airline and airport staff who interact with customers, not just those who physically assist or handle.

In fact, as a woman with muscular dystrophy who cannot walk at all, my best experiences have been with the people physically lifting me, and my worst experiences have been with gate agents and flight attendants who treat me with disrespect while violating the law. They have raised their voices at me while I'm instructing my assistant in preparing my wheelchair for stowage, threatened to "offload" me from the flight, repeatedly denied me and rolled their eyes when I request that my wheelchair be brought to the door, and repeatedly resisted ensuring adjoining seats for me and my assistant, who sometimes has to physically prevent me from falling forward from the airplane seat.

I request that you expand the annual training to all customer-facing airline and airport staff, including gate agents and flight attendants, because these staff members have significant power over Disabled travelers' safety and experiences.

2. While the DOT's Aviation Consumer Protection policies (which state "Your device must be returned to you in a timely manner as close as possible to the door of the aircraft") and Airline Passengers with Disabilities Bill of Rights are excellent, they are difficult to call upon in the moment they're being violated. When gate agents, flight attendants, and other staff have tried to pressure me against the law, I have had to resort to finding the DOT's laws and policies on my phone (try doing that in airplane mode!). The times I can successfully excavate and point to the documentation are the only times staff have reluctantly backed down. But I believe the burden of carrying the law around shouldn't fall on each Disabled passenger.

Therefore, I request that these laws and policies be easily visible and available in accessible formats, such as: (a) being posted prominently at gate terminals and check-in desks, (b) being available in print at gate terminals and check-in desks, and (c) being included in onboard brochures at every seat.

I believe these two additions to the proposal will greatly enhance its ability to accomplish its mission to ensure airline passengers who ride wheelchairs can travel safely and with dignity.

————

Link to my comment: regulations.gov/comment/DOT-OS…
Submit your own comment: regulations.gov/commenton/DOT-…
Press announcement: transportation.gov/briefing-ro…
Full text download of the proposed rule: regulations.gov/document/DOT-O…
Aviation Consumer Protection policy on wheelchairs and other assistive devices: transportation.gov/individuals…
Airline Passengers with Disabilities Bill of Rights: transportation.gov/airconsumer…
Tags: #Disability, #DisabilityJustice, #DisabilityRights, #ableism, #travel


Liking the latest #ATBanter #Podcast Episode 310 - #Ableism Part 4 - atbanter.podbean.com/e/at-bant…

Lots of great thoughts on the hierarchy of ability in our society.

#a11y


In searching for an instance to join, I noticed that many do not mention ableism in their ToC. I care about avoiding ableist language, so I picked one that did mention it.

I do notice quite a bit of ableist language in the larger fediverse, so decided to write a blog post of common objections to avoiding ableist language, and my responses to them.

Here it is: medium.com/@kavanaram/avoid-ab…

#Disability #Ableism #AbleistLanguage @disability