Search

Items tagged with: disability


Remember that white house executive order against DEIA, “diversity, equity, inclusion, and accessibility”?

They went out of their way to add the A for accessibility. So this is very sad but not surprising.

"Trump administration cuts funding to Oregon disability programs"

opb.org/article/2025/09/11/tru…

"Organizations across Oregon received notice from the U.S. Department of Education that they’d lose hundreds of thousands of dollars"

#Oregon #Disability #Accessibility #DisabilityJustice #Education


Sensitive content


I don't know who needs to hear this, but being disabled is not your fault. Sometimes our minds can makes us think that it is, but it simply isn't so.

#disability #disabled


I feel that way about adding ALT text. A lot of Mastodonsters complain when images don't have ALT text. I put a lot of effort into adding ALT text for all my photos but I haven't gotten one bit of praise or positive feedback #disability




Hi everyone. How are you tonight?

It’s been a rough few months, and I wanted to share an update since I haven’t posted in a while.

A few months ago, I was officially diagnosed with Rheumatoid Arthritis, something we’ve suspected for a while, so it was nice to finally get confirmation. My rheumatologist started me on Methotrexate, and that’s when things took a turn for the worse.

I was prescribed 6 tablets once a week and took them for 6 weeks. But I started getting extremely sick with flu-like symptoms, worsened gastroparesis, painful sores all over my body, and more. When we looked up Methotrexate side effects, I had around 20 of the ones that say to seek medical attention immediately.

We later found out that, due to my other health conditions, I should never have been prescribed Methotrexate in the first place. I also should’ve been monitored weekly, which wasn’t happening. Things got so bad we nearly went to the hospital several times, but since I’m immunocompromised and Methotrexate suppresses the immune system, we were afraid I’d catch something in the ER.

We tried contacting my doctors, but no one responded. So we stopped the medication ourselves. It’s been about 3 weeks since I stopped, and I’m still recovering, but I’m slowly getting stronger. Unfortunately, my RA is flaring badly in my hands and feet since it’s currently untreated.

A few days ago, I did end up going to the hospital because I wasn’t improving. They found my blood sugar was dangerously high, diagnosed me with diabetes, gave me fluids, and discharged me. Ironically, I started feeling better the next day. Now we’re unsure if I truly have diabetes or if it’s a lingering effect of the Methotrexate, which can mess with blood levels.

I was so sick I had to take a C in my theology course because I couldn’t finish the final paper, and I had to drop the next class I was supposed to start. My next course begins August 25, and I’m doing everything I can to be well enough to take it.

This whole experience showed me how broken my care coordination is. My primary care doctor didn’t know what was happening and wasn’t communicating with my other specialists. No one was checking my chart to make sure treatments wouldn’t conflict with my other conditions. I have a meeting next week with my Medicaid service coordinator to talk about better coordinated care and possibly enrolling in dual Medicare/Medicaid, which I’ve been told I qualify for.

This could have killed me. I’m grateful to be alive and slowly healing, but I’m also angry and frustrated that this happened at all.

Thanks for reading. I appreciate all of you.

#ChronicIllness #disability #RheumatoidArthritis #Methotrexate #Gastroparesis #Diabetes #Medicaid #Medicare #HealthcareSystem #PatientSafety #CareCoordination #Immunocompromised #DisabledAndProud #Survivor #Spoonie #SpoonieLife #HealthUpdate #ChristianSpoonie


MAHA just announced that states will be able to prohibit people from purchasing junk food with SNAP.

They claim this will make people healthier.

That it’ll force them to make better choices. It won’t.

Why? They aren’t addressing the privilege involved with healthy eating

I’m all for a healthy diet. I only consume whole and unprocessed foods myself, and even did a year as a raw vegan to try and reduce my overall inflammation.

It was an eye opening experience that I was only able to do because of my privilege.

In a perfect world, we would all be eating the healthiest and most nutrient dense food available.

But we don’t live in a perfect world.

Whole foods are more expensive, take longer to prepare and require more effort than “junk food”

People who are disabled, elderly, living in poverty and/or food deserts sometimes have no other choice.

Fed is better than dead.

This latest restriction will result in people going hungry. Kids starving because their parents can’t make them a healthy meal.

You can’t cut off an entire category of food without addressing the various systemic barriers to healthy eating.

There needs to be a plan to lower the cost of fresh whole foods. They need to be made more available, cheaper and in easy to prepare options.

People need a basic living wage to ensure they have the time to shop, prep and cook.

If you’re working two full time jobs just to survive; you can’t possibly be cooking from scratch every day.

Even if all those goals were accomplished, there are still people who rely on junk food for survival.

There are still people who may want it as an occasional treat.

Banning it altogether sends a message that poor & disabled people don’t “deserve” treats.

This isn’t about making people healthier. It’s about blaming them for their illnesses.

If we blame diet and lifestyle, we can feel better about not treating people when they get sick.

It’s eugenics and it’s on full display.

There are so many better ways to encourage people to eat healthier.

We should have universal healthcare, a basic income, childcare and affordable housing.

If basic needs are met, healthy living becomes much easier.

Finally, disability is no one’s fault.

Healthy living can help, but you can’t wellness your way out of chronic illness.

It doesn’t work that way, and the only reason to convince people otherwise is a desire to label disabled people expendable.

We are not expendable.

#uspol #disability #FoodInsecurity #snap #ableism #rfkjr #hhs #chronicillness


🇨🇦 Canadians prefer the disabled and poverty stricken pushed out of sight-- invisible

Punishing unhoused people for existing doesn’t make them go away

#Canpoli #Canada #Poverty #Housing #MentalHealth #Disability #invisible

policyalternatives.ca/news-res…


Did y'all know it's Disability Pride month? Well I totally forgot. Lol. Pride. I can't be proud to be blind.

#blind #disability #accessibility


From the Disability Visibility Project:

"Immigrant Rights Are Disability Rights"

disabilityvisibilityproject.co…

"… a true commitment to justice for disabled people must recognize that many undocumented immigrants are themselves disabled and deserving of basic rights, not total erasure from the disability rights discourse."

#USPol #Disability #DisabilityRights #Ableism #Immigration #HumanRights


Disabled people are not “scamming the system”

The system is punitive by design.

Hard to navigate and nearly impossible to get approved.

You have to endure years of dehumanizing and stressful intrusions into your health & life just to access a meagre benefit that keeps you below the poverty line.

#disability #eugenics #ableism #chronicillness #poverty


You guys, Mamdani was the only Democratic candidate running who categorically opposed mask bans

He was running against an establishment man with name recognition, huge amounts of funding & a history of abandoning the most vulnerable to die of covid

This feels like a huge win for vulnerable people

#uspoli #nyx #fascism #maskbans #disability #mamdani


We need urgent community action to stop this incredibly ableist plan from moving forward.

The DOE has ruled that new federal buildings don’t have to meet accessibility standards.

That will mean many disabled people won’t be able to work in or access these places.

They’re literally excluding us from as many facets of life as possible, because they have a eugenics plan.

Call, email, speak out!

Accessibility is not a “nice to have”. It’s a legal right. It’s necessary for our survival.

federalregister.gov/documents/…

#uspol #fascism #disability #chronicillness #ableism #accessibility #doe



One of my closest and longest friends is starting a new YouTube channel documenting his journey to fulfill a life-long dream of his. Even though he's low vision, through a new program available in Ontario, he has the opportunity to gain his drivers license via the use of a bioptic telescope. If you love cars as much as he does, are just curious, or are a low vision person interested in what a program like this could mean for you, check out his first video on the channel! As far as I know, this is the first time someone has documented the journey of learning to drive with a bioptic telescope from day one, from the perspective of a person with a disability, rather than a doctor or other medical professional. You can find the video here: www.youtube.com/watch?v=8GZdw1CzYtI#a11y#cars#driving#accessibility#disability


When I had my hysterectomy, I was told recovery would be quick because I was young, fit & otherwise healthy.

They were wrong. The surgeon made an error and despite signs of post op bleeding, discharged me & went on vacation.

When I returned to the ER, I was ignored & gaslit

They told me it was “normal” to be in more pain 8 days after surgery than on day 1 (it’s not).

They said “what do you want us to do?”

They refused to run any tests beyond basic vitals, and scolded me for wasting their time

I knew something was wrong, but I was young and hadn’t yet learned how to advocate for myself.

The pain, swelling and bruising were getting worse with each passing day. I was dizzy, listless and had no appetite.

I slept ALL the time.

I was not getting better

I did what anyone would do, I went back to the ER. Surely this time they would take me seriously?

They didn’t. They made no attempt to hide their frustration that I had returned”. They made misogynistic comments about how “sensitive” I was & that being in pain was normal

I went home feeling completely dejected and disrespected, but also starting to gaslight myself.

Maybe it wasn’t that bad. Maybe this was normal pain. Maybe I did need to suck it up.

I tried to force myself to eat and go for light walks. I tried to play through the pain.

I was vomiting everything up and frequently collapsing from fatigue.

I could not suck this up.

My boyfriend had to carry me into the ER for a third attempt to get help

They did the exact same thing. Asked what we expected them to do. Told us the pain was normal. Refused to call a consult or run tests.

Thankfully my boyfriend believed me over them. He was certain if I went home, I wouldn’t make it through the night

He refused to let them discharge me. He told them, loudly and sternly, that he was not taking me home to die. That they needed to do their jobs.

They threatened to call security but he did not back down.

Thankfully a doctor overheard him and decided to look in and see if he could calm the situation.

When he saw me, half unconscious and white as a ghost, he immediately ordered tests. He told the triage staff not to call security and to take me into a private room

It turns out my boyfriend was right. Had I gone home that night, I wouldn’t have made it to morning.

I had a massive internal bleed and a giant infected abscess which had been growing since the surgeon sent me home.

I was rushed to another hospital for emergency surgery and given 50/50 odds of survival. I spent over a month in the hospital, developed a second hospital acquired infection, and needed 11 months to fully recover.

I survived due to luck & privilege. Had my boyfriend not believed me, I wouldn’t be here. Had he not been a white man? He likely would have been removed & I would have died

This is medical misogyny. They didn’t listen because I was a woman. They thought I was being dramatic

I tell this story because of what happened to Adriana Smith. A young black woman in Georgia who tried to get medical care for severe headaches, and was dismissed and gaslit instead.

She suffered brain death at home because no one believed her. Because of misogynoir.

To make matters worse, she’s been turned into a medical experiment because she was nine weeks pregnant and living in a state with an abortion ban. She’s on organ & tissue support being treated as a human incubator.

No care when alive & forced “care” when dead

Misogyny in medicine kills. It maims. It disables and traumatizes.

Women are frequently treated as hysterical and not given the medical care they require.

We often need a man to accompany us just to be taken seriously.

It’s not right and it needs to change

I will forever deal with medical PTSD because of what I went through, but at least I survived.

Adriana wasn’t so lucky, and no one’s survival should ever be based on luck, privilege or their ability to find a man to speak for them

I survived due to luck and privilege, Adriana didn’t.

What’s worse, due to abortion bans and dangerous forced birth policies, her body is kept alive on organ and tissue support without her family’s consent.

We must do better:

disabledginger.com/p/adriana-s…

#misogyny #misogynoir #ableism #patriarchy #abortion #mybodymychoice #disability #ableism #uspol


Also totally forgot to talk about this yesterday.
As a part of global accessibility awareness day, we put out a new update for the Be My Eyes app for Windows that is completely rebuild from the ground up. Along with giving us a better base to build amazing new features for desktop in the near future, this new app also fixes a lot of the accessibility issues that people have reported over the last 1.5 or so years.
In addition Chat History is now also available on Desktop, so you can start a conversation from mobile and continue it on desktop (and vice versa).

#a11y #bemyeyes #gaad #globalaccessibilityawarenessday
#blind #bme #tech
#disability #assistivetech


Be My Eyes and Innosearch Join Forces to Bring Seamless, AI-Powered eCommerce to Blind and Low Vision Users

‍Be My Eyes announced today – on Global Accessibility Awareness Day – a strategic alliance with Innosearch.ai, an AI-powered eCommerce portal. The alliance will provide super-accessible online shopping to the users of the Be My Eyes app,, without the clutter and noise present of many other websites.

Be My Eyes users will benefit from an exclusive 2% cashback credit into their Innosearch account for use against future purchases made through the Be My Eyes app. The service is currently available in the U.S., Canada, United Kingdom, and Australia, with more regions to follow.

The alliance represents a significant step and new direction for Be My Eyes, as it lays the foundations of the Be My Eyes app and the underlying technology platform becoming the de-facto access-tech of choice for people who are blind or have low vision, wherever they are – at home, at work or at play.

bemyeyes.com/news/be-my-eyes-t…
#globalaccessibilityawearnessday
#gaad #a11y #bemyeyes #innosearchai #innosearch #blind #shopping #disability #assistivetech


Neither Simple, nor Intelligent parking system for disabled drivers.

So, you park, get into your wheelchair, wheel yourself 100m to the building where the scanner is (inside the Medical Centre), scan your badge, wheel yourself 100m back to the car, return the badge, wheel yourself 100m back to the Medical Centre for your appointment.

Could it be ANY more disabled unfriendly?
#stupidity #disability #DisabilityInclusion #medical #commonsense


Yesterday at the #PlayStation concert, a young, blind man sat next to me.

We got talking and it turns out he is an accessibility consultant for companies, including video game developers and has worked with Sony on God of War and other products!

He goes by his handle: Sightless Kombat.

He is entirely #blind from birth, but loves video games so is passionate about accessibility in the sector.

I told him to come join Mastodon as I think it’s the friendliest social network for visual impairments, he said he was thinking of joining but wasn’t sure which instance was good. I’m not sure if there is one that’s dedicated to visual impairment? I just told him to join mstdn.games 😅

Anyway, here’s his YouTube & Twitch channels, and website if you’re interested in seeing what he has to offer. The dude has platinumed God of War Ragnarok on its hardest difficulty, what a legend!

YouTube: youtube.com/@sightlesskombat?s…

Twitch: twitch.tv/sightlesskombat

Website: sightlesskombat.com/

#disability #disabled #Accessibility


⚠️ URGENT! please help a #disabled, #queer woman cover groceries, her electric bill, & a bank overdraft. the government refused to pay her usual disability benefits because of her outstanding debts. only $125 CAD now needed!

paypal.com/paypalme/ourinsatia…

@mutualaid

#disability #mutualAid #MutualAidRequest #BlackMutualAid #DisabilityCrowdfund #actuallyAutistic #neuroDivergent #LGBTQIA #LGBTQ #poverty #DisabilityMutualAid #HelpRequest #HelpFolksLive2025 #canada #queerMutualAid #queerCrowdfund


When I started The Disabled Ginger I sent it to my friends and family … as most of us do.

I was proud that I was finally standing up for disability rights. That I was taking my pain and putting it on the page in an effort to help others. That I had found something that lit a spark inside me.

Unfortunately, many of my friends didn’t feel the same way.

My disabilities are invisible, and I had become very good at hiding them. Apparently that’s what people expected of me, as they didn’t like this “new” version of Kelly.

Almost none of my friends subscribed. What’s worse, many stopped talking to me. Or would only reply in brief texts.

It’s almost been a year since I launched, and my circle is noticeably smaller. Many people I thought I was close with haven’t reached out for nearly 6 months.

When you find your purpose and your passion, it’s an incredible feeling. Hopefully people support you.

Not everyone will. And that’s ok.

It’s painful seeing so many relationships fade away. It hurts knowing they don’t see the value in me now that I’m “officially” disabled.

As painful as it is, it’s also a perfect example of why I became an advocate. Ableism is a huge problem. Being disabled can be incredibly lonely. I wanted to give a voice to those who haven’t yet found theirs.

In the process I’ve met incredible people from all over the world who inspire me to keep going. Who give me a reason to write every day. Who remind me of the compassion, love and goodness that’s still out there.

Thank you to each and every one of you. I couldn’t do this alone.

My latest looks at the reasons we hide, and what would happen if we all decided to stop hiding and show the world the realities of chronic illness:

disabledginger.com/p/why-are-c…

#chronicillness #longcovid #mecfs #ableism #disability #disabilityrights #eugenics







Top Tech Tidbits for Thursday, February 27, 2025 - Volume 1004 ♿️
toptechtidbits.com/tidbits2025…

The Week's News in Access Technology
A Mind Vault Solutions, Ltd. Publication
#news #technology #accessibility #a11y #disability #blind #deaf #deafblind #toptechtidbits

Top Tech Tidbits. The world's #1 online resource for current news and trends in access technology.

Subscribers: 36,455 🔢️ subscribers were sent this issue via email.


If you think mask bans are “no big deal” because there’s medical exemptions, please consider the following:

😷 Police are not doctors
😷 Many disabilities are invisible
😷 Disabled people don’t live in a bubble. I need my friends and caregivers to mask to protect me
😷 Everyone should have the right to protect their health, you shouldn’t have to already be sick to be permitted to mask
😷 Criminalizing masks sends a message that maskers are “bad”. It emboldens anti-maskers and increases odds of aggression

The reality is that mask bans are discriminatory, ableist and eugenicist. They push disabled people out of public spaces. They put marginalized and POC at increased risk of police profiling.

There’s no official policy for a medical exemption either, it’s at police discretion.

If you’re stopped and questioned, you will have to prove you’re masking for the “right reasons”

I’m more than willing to admit that if I were stopped by a cop for masking, I would appear nervous, shaky, tachycardic and probably “suspicious”.

Not because I’m doing anything wrong, but because my illnesses do not respond well to stress and the police are stressful.

It’s not right to put the onus on the masker to defend their right to mask. We’re still in a global pandemic. Texas has a measles outbreak. There’s tuberculosis in Kansas. Bird flu is spreading and it’s the worst year for influenza A in over a decade.

Masks are a public health tool. They’re a disability accommodation. They should NOT be criminalized.

For more on mask bans and medical exemptions, I wrote an article on the Nassau County ban here:

disabledginger.com/p/nassau-co…

#nomaskban #uspoli #texas #northcarolina #maskban #disability #uglylaws #publichealth #ableism #eugenics #h5n1 #measles #longcovid #covidisairborne


🆕 article from @TetraLogical

Meet Josh: a sportsman who has Spinal Muscular Atrophy

"The missing piece is usability testing with disabled users. Even with good intentions, accessibility efforts can fall short without real user involvement."

#disability #a11y

tetralogical.com/blog/2025/02/…


This is a great initiative to help advance accessible sports: derekriemer.com/posts/2025/01/… While this is an inspirational idea for now, it definitely deserves sharing around. #accessibility #sports #disability